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It's just an hypothesis, but I think saying CF when you actually have an atypical form of it is a bit dishonest. I have no doubt that diet and lifestyle do wonders for many conditions including yours, but the CF everyone thinks about is the one discovered in infancy and the full set of symptoms, not the one with late onset (at an age which many CF patients do not even reach) and milder symptoms.

If you were willing to lift up that imprecision, I bet you wouldn't have such a hard welcome.



It's a case of damned if I do, damned if I don't. People with CF don't like me saying "mild" CF. They have a cow about that. I spent years on CF forums and got schooled on that detail quite thoroughly. There are more than 1600 alleles that can lead to a diagnosis of CF and the exact presentation of the condition varies from one person to the next in part because of that.

My condition is not late onset. I have had it my whole life. Being diagnosed late doesn't mean it "came on" late. I spent years being treated by people like I was some kind of hypochondriac and asking doctors "Can we test me for something? My body doesn't seem to work normally." and being blown off.

It's not imprecision. I'm as precise as I know how to be or you wouldn't know that my actual diagnosis is atypical cystic fibrosis. I in no way hide that.

So from where I sit, that just looks like yet another BS excuse or justification for people on the internet to be jerks to me.


I knew it because I looked up your bio for the first time You don't hide it, but I don't remember reading it in your posts here, not as much as the complaints about other people's behavior at least.

>My condition is not late onset.

And the only person I knew with CF had been diagnosed as a toddler and had a 20 y. life expectancy because of genetic bad luck. That you could live 30 years without heavy treatment sure says that your condition was not as bad as that person, and maybe there's a state of affliction that cannot be conservatively managed.




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